Our client, a consultant specialising in technology and healthcare strategy, reached out to us for help in arranging a new project which followed on from some previous successful work with FieldworkHub. They were wanting to explore the impact that bronchiectasis has on the lives of patients who suffer from this rare disease, and hoped to gather a broad range of perspectives from across the globe. Patient insight is among the most rewarding types of research that we do at FieldworkHub, and we were proud to support such an impactful study.
The client asked us to run an online quantitative survey in Australia, Germany, Bulgaria, and the United States and in-depth qualitative interviews in the UK, India, Argentina and Japan. All participants were required to have a diagnosis of non-cystic fibrosis bronchiectasis and a history of bronchiectasis exacerbations.
We took on a number of recruitment quotas on a ‘best efforts’ basis, with the targets including of a mix of genders, some who had been part of a clinical trial, people living in rural areas as well as urban areas, and some who were active in patient advocacy groups . ‘Best efforts’ means that while we will try our hardest to recruit as many participants who fit the criteria as possible, we recognise that it is a challenging request and may not be able to satisfy all of the quotas simultaneously.
The FieldworkHub team successfully recruited bronchiectasis patients in all markets for both the qualitative aspect of the research and the quantitative element, but not without some challenges. One of the more difficult aspects of recruiting participants with rare diseases is verifying the patient’s diagnosis. In Japan for example, there is currently no ‘official’ diagnosis of bronchiectasis and no approved treatment programs. Verifying that participants in Japan suffered from suspected bronchiectasis therefore involved checking that their symptoms (as described in a doctor’s note) and scans of the patient’s lungs were in line with those from patients with a similar diagnosis in other global markets.
It was also very important to verify that all participants were not confusing their diagnosis with the much more common condition of bronchitis. We also managed to include participants who had been part of a clinical trial or were members of local patient advocacy groups. This formed an essential input to our client’s analysis in finding suitable ways to support patients who were living with a rare diagnosis, and how to engage with them across different cultural norms and attitudes.
Lastly, we managed to recruit patients to fit the urban and rural quotas. This allowed our client to gain important insight into how environmental factors can affect different patients (such as environmental pollution in urban areas, and dust exposure in dry rural climates). Our client expressed how pleased they were to receive such revealing insights into the different experiences that patients can have across the globe, especially considering the differing advice about managing their condition that patients expressed receiving through both formal and informal sources.
The team at FieldworkHub have been an absolute pleasure to work with. We threw in a mid-fieldwork curveball requesting additional sample and the team accepted the request with no issues in delivering. The quality of the sample was high and I have no hesitation in recommending FieldworkHub and look forward to working with them again.
We wanted to say a huge thanks for your help with our study! It was very smooth and easy to work with you and the respondents you recruited gave really amazing reflective responses that helped shape our insights and learnings on the project.
